Heart Disease Advocacy Groups & Heart Disease Support Groups

According to the CDC, a variety of heart diseases led to 659,041 deaths in 2019. If you or a loved one is suffering from heart disease, you are not alone. Below, we have put together a list of heart disease advocacy groups and heart disease support groups to explore and find others going through similar journeys.

Heart Disease Advocacy Groups:

• Adult CHC Survivors of Cincinnati (Facebook) – https://m.facebook.com/SurvivingCHDofCincinnati/
• Adult Congenital Heart Association – https://www.achaheart.org/
• Alliance for Aging Research (Heart Valve Disease Awareness Day) – https://www.agingresearch.org/advocacy-topic/valve-disease-awareness-day/
• Alliance for Aging Research https://www.agingresearch.org/advocacy-topic/
• AORTIC Hope – https://www.aortichope.org/
• Association of Black Cardiologists (Advocacy Resources) – https://abcardio.org/advocacy-agenda/advocacy-resources/
• Ben’s Friends Patient Support Communities https://www.bensfriends.org/community-list/
• Children’s Heart Foundation – https://www.childrensheartfoundation.org/
• Children’s Heart Network – https://www.childrensheartnetwork.org/
• Children’s HeartLink – https://childrensheartlink.org/?gclid=CjwKCAjw07qDBhBxEiwA6pPbHtfOpbiZ1_l6Dn6JF8pE2mJDHcwY_5t8S2jKxc-xlvZErP1WrwJvWBoCOAsQAvD_BwE
• Cincinnati Children’s Heart Institute – https://www.cincinnatichildrens.org/service/h/heart-institute/patients/support
• Cincinnati Children’s Heart Instiute (Patient and Family Advisory Council) – https://www.cincinnatichildrens.org/service/h/heart-institute/patients/hipfac
• Cleveland Clinic (Support Groups and Organizations) – https://my.clevelandclinic.org/departments/heart/patient-education/support-groups
• Close the Gap Heart Failure – https://www.knowyourhealth.com/en-US/Health-Conditions/heart-failure.html
• Conquering CHD – https://theheartfoundation.org/join-the-fight-donate-now/?gclid=Cj0KCQjwsLWDBhCmARIsAPSL3_2hDx7vNRCirNQ7b7fJZi0RQTEUWtL8pHLlQzWhaJm3GMI5cyWZUx4aAiRVEALw_wcB
• Global Heart Hub – https://globalhearthub.org/affiliate-map/
• Go Red for Women – https://www.goredforwomen.org/en/get-involved/advocate
• HCM Beat – https://hcmbeat.com/
• Heart Valve Surgery (Community) – https://www.heart-valve-surgery.com/journals/
• Heart Valve Voice US – https://www.heartvalvevoice-us.org/
• org (Advocacy) – https://www.heart.org/en/get-involved/advocate
• HeartLife Canada – Help for Hearts (Facebook) –https://www.facebook.com/groups/heartlifecanada
• HeartLife Canada – https://heartlife.ca/
• https://www.conqueringchd.org/
• HUG Podcast Network (Congenital Heart Defect Information) – https://www.hug-podcastnetwork.com/chd-info.html
• Hypertrophic Cardimyopathy Association (Advocacy) – https://www.4hcm.org/advocacy
• INOVA (Heart and Vascular Institute) – https://www.inovaheart.org/visitor-info/ifh
• International Society for Adult Congenital Heart Disease – https://isachd.connectedcommunity.org/home
• Living With Congenital Heart Defects – https://www.atrialseptaldefectsupport.org/
• Mended Hearts (Advocacy) – https://mendedhearts.org/advocacy/
• National Organization for Rare Disorders (Congenital Heart Information Network) – https://rarediseases.org/organizations/congenital-heart-information-network-c-h-i-n/
• Patient Advocacy Foundation – https://www.patientadvocate.org/matters-of-the-heart/
• The Congenital Heart Information Network (Facebook) – https://www.facebook.com/TCHIN.org
• Women Heart – https://www.womenheart.org/category/advocacy-in-action/
• Women Heart (Find Support) – https://www.womenheart.org/find-support/
• Xarelto (CAD Support: Reach Out and Connect (advocacy resources)) – https://www.xarelto-us.com/coronary-artery-disease/patient-advocacy-community