According to the CDC, a variety of respiratory diseases led to 156,979 deaths in 2019. If you or a loved one is suffering from a respiratory disease, you are not alone. Below, we have put together a list of respiratory disease advocacy groups and respiratory disease support groups to explore and find others that are going through similar journeys.
Respiratory Disease Advocacy Groups:
a) Asthma
- American Academy of Allergy and Asthma Immunology – https://www.aaaai.org/
- Asthma Allergy Foundation of America – https://www.aafa.org/
- Asthma Allergy Foundation of America (Advocacy) – https://www.aafa.org/advocacy.aspx
- Asthma and Allergy Care (Support links) – http://aacallergy.com/asthma-allergy-links/
- Asthma and Allergy Foundation of American (AAFA) (Facebook) – https://www.facebook.com/AAFANational/
- Asthma Support Group (Facebook) – https://www.facebook.com/asthmasupportgroup/
- Asthma Support Group (Facebook) – https://www.facebook.com/groups/615544601964794/
- Global Asthma Network (Resources) – http://globalasthmanetwork.org/patients/other.php
- org (Asthma) – https://www.lung.org/
- Respiratory Health Association (Asthma) – https://resphealth.org/healthy-lungs/asthma/living-with-asthma/
- Severe Asthma Patient Support Group (Facebook) – https://www.facebook.com/Severe-asthma-patient-support-group-107667467549553/
- WebMD (Asthma Support) – https://www.webmd.com/asthma/guide/asthma-support
b) Chronic Obstructive Pulmonary Disease (COPD)
- American Association for Respiratory Care (Advocacy) – https://www.aarc.org/advocacy/
- American Lung Association (COPD Advocacy) – https://www.lung.org/lung-health-diseases/lung-disease-lookup/copd/copd-advocacy#:~:text=Send%20a%20Message-,Federal,Affairs%20and%20other%20federal%20programs.
- Chronic Bronchitis Support and Awareness (Facebook) – https://m.facebook.com/groups/150915905679806
- COPD (Support) – https://www.copd.com/copd-support/where-to-find-help/
- COPD Exercise to Healthy Living (Facebook) – https://www.facebook.com/groups/483313128759846/
- COPD Foundation (Community) – https://www.copdfoundation.org/COPD360social/Community/Get-Involved.aspx?gclid=CjwKCAjw9r-DBhBxEiwA9qYUpVaX5VXXOVMxpBMrCbQO203UbAlz_F8XJb7BFiXFn8qq9OPM7BXeLBoCymQQAvD_BwE
- COPD Foundation (Facebook) – https://www.facebook.com/COPDFoundation
- COPD Information and Support (Facebook) – https://www.facebook.com/groups/copdinformationandsupport/
- COPD Rehabilitation and Support Group (Facebook) – https://www.facebook.com/groups/301487797167783/
- net (Facebook) – https://www.facebook.com/COPDDotNet/
- Everyday Health (COPD Resources) – https://www.everydayhealth.com/copd/guide/resources/
- Global Healthy Living Foundation (Lung Disease, COPD) – https://www.ghlf.org/lung-disease-asthma-copd-coronavirus-patient-support/?gclid=CjwKCAjw9r-DBhBxEiwA9qYUpXr7W1707bwlt94UI1QJFB3mjZugUw77suQlsnXcTPQ2XrlW3UzZkxoC6zsQAvD_BwE
- Gold COPD (Patients and Advocacy) – https://goldcopd.org/patients-advocacy-groups/
- Learn More Breathe Better (Facebook) – https://www.facebook.com/BreatheBetter/
- Lets Talk COPD Support Group (Facebook) – https://www.facebook.com/groups/370506570013902/
- National Heart, Lung, and Blood Institute (COPD Publications for Patients/Caregivers) – https://www.nhlbi.nih.gov/health-topics/education-and-awareness/copd-learn-more-breathe-better/publications-patients
- Respiratory Health Association (COPD Advocacy) – https://resphealth.org/healthy-lungs/copd/copd-advocacy/
- UCSF Health (Chronic Bronchitis Resources and Support) – https://www.ucsfhealth.org/conditions/chronic-bronchitis/support
- US SOPD Coalition – https://uscopdcoalition.org/
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