Respiratory Disease Support Groups and Advocacy Groups

According to the CDC, a variety of respiratory diseases led to 156,979 deaths in 2019. If you or a loved one is suffering from a respiratory disease, you are not alone. Below, we have put together a list of respiratory disease advocacy groups and respiratory disease support groups to explore and find others that are going through similar journeys.

Respiratory Disease Advocacy Groups:

a) Asthma

• American Academy of Allergy and Asthma Immunology – https://www.aaaai.org/
• Asthma Allergy Foundation of America – https://www.aafa.org/
• Asthma Allergy Foundation of America (Advocacy) – https://www.aafa.org/advocacy.aspx
• Asthma and Allergy Care (Support links) – http://aacallergy.com/asthma-allergy-links/
• Asthma and Allergy Foundation of American (AAFA) (Facebook) – https://www.facebook.com/AAFANational/
• Asthma Support Group (Facebook) – https://www.facebook.com/asthmasupportgroup/
• Asthma Support Group (Facebook) – https://www.facebook.com/groups/615544601964794/
• Global Asthma Network (Resources) – http://globalasthmanetwork.org/patients/other.php
• org (Asthma) – https://www.lung.org/
• Respiratory Health Association (Asthma) – https://resphealth.org/healthy-lungs/asthma/living-with-asthma/
• Severe Asthma Patient Support Group (Facebook) – https://www.facebook.com/Severe-asthma-patient-support-group-107667467549553/
• WebMD (Asthma Support) – https://www.webmd.com/asthma/guide/asthma-support

b) Chronic Obstructive Pulmonary Disease (COPD)

• American Association for Respiratory Care (Advocacy) – https://www.aarc.org/advocacy/
• American Lung Association (COPD Advocacy) – https://www.lung.org/lung-health-diseases/lung-disease-lookup/copd/copd-advocacy#:~:text=Send%20a%20Message-,Federal,Affairs%20and%20other%20federal%20programs.
• Chronic Bronchitis Support and Awareness (Facebook) – https://m.facebook.com/groups/150915905679806
• COPD (Support) – https://www.copd.com/copd-support/where-to-find-help/
• COPD Exercise to Healthy Living (Facebook) – https://www.facebook.com/groups/483313128759846/
• COPD Foundation (Community) – https://www.copdfoundation.org/COPD360social/Community/Get-Involved.aspx?gclid=CjwKCAjw9r-DBhBxEiwA9qYUpVaX5VXXOVMxpBMrCbQO203UbAlz_F8XJb7BFiXFn8qq9OPM7BXeLBoCymQQAvD_BwE
• COPD Foundation (Facebook) – https://www.facebook.com/COPDFoundation
• COPD Information and Support (Facebook) – https://www.facebook.com/groups/copdinformationandsupport/
• COPD Rehabilitation and Support Group (Facebook) – https://www.facebook.com/groups/301487797167783/
• net (Facebook) – https://www.facebook.com/COPDDotNet/
• Everyday Health (COPD Resources) – https://www.everydayhealth.com/copd/guide/resources/
• Global Healthy Living Foundation (Lung Disease, COPD) – https://www.ghlf.org/lung-disease-asthma-copd-coronavirus-patient-support/?gclid=CjwKCAjw9r-DBhBxEiwA9qYUpXr7W1707bwlt94UI1QJFB3mjZugUw77suQlsnXcTPQ2XrlW3UzZkxoC6zsQAvD_BwE
• Gold COPD (Patients and Advocacy) – https://goldcopd.org/patients-advocacy-groups/
• Learn More Breathe Better (Facebook) – https://www.facebook.com/BreatheBetter/
• Lets Talk COPD Support Group (Facebook) – https://www.facebook.com/groups/370506570013902/
• National Heart, Lung, and Blood Institute (COPD Publications for Patients/Caregivers) – https://www.nhlbi.nih.gov/health-topics/education-and-awareness/copd-learn-more-breathe-better/publications-patients
• Respiratory Health Association (COPD Advocacy) – https://resphealth.org/healthy-lungs/copd/copd-advocacy/
• UCSF Health (Chronic Bronchitis Resources and Support) – https://www.ucsfhealth.org/conditions/chronic-bronchitis/support
• US SOPD Coalition – https://uscopdcoalition.org/

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